Updated: 29 December 2018
We understand that end of life care, also known as palliative care, may not be an easy topic to think or talk about. That is why we are working with our partners to create an end of life care strategy and Citizen’s Charter that aims to improve and further develop end of life care and support services.
Survey: August and September 2018
To ensure that we reflect the needs and views of the Vale of York community we recently asked local patients and members of the public to share their experiences through a survey. This was sent our through a press release in the local newspaper, stakeholder and voluntary groups, carers.
As part of our commitment to involving our patients and public, we have held a number of focus groups and open sessions to share the feedback we have already received and ask for your involvement in creating a set of principles to support the care that is provided to individuals at the end of life.
Face to face sessions: May-November 2018
- May 2018: St Leonard’s stall during dying matters week
- 21 August: Lunch time session at York Teaching Hospital for clinicians, hospital, hospice, community services, GPs
- 12 September: Presentation at a ‘Partners in Care’ meeting for care home managers and nurses Care homes
- 1 October: Presentation at a carers advisory group
- 16 November: We spent a day at St Leonard’s hospice speaking to people with a life limiting illness, volunteers and recently bereaved family members.
- 22 November: Open public session led by Dr Dan Cottingham, lead for cancer and end of life care at the Vale of York CCG.
Reaching diverse communities:
To ensure that we develop relationships with diverse communities, and ‘seldom heard’ groups we identified resources and sources of support by using existing patient, service user and VCSE organisations. In particular we worked with local Healthwatch and CVS organisations to gather intelligence, promote the survey and invite their networks to the public sessions.
We also spent time with carer groups, older people’s forums and visiting service users in the hospice. We have incorporated feedback from our Learning Disability community, through existing work that was commissioned in our neighbouring Scarborough and Ryedale CCG.
Feedback so far – what our population has told us.
Below are a number of links to presentations and initial feedback from surveys and sessions:
- 22 November 2018: Presentation
- 22 November 2018: Verbatim comments
- Key themes slides – showing results from the survey and public sessions from September to December
- Scarborough and Ryedale CCG - Learning disability annual health check, cancer screening End of Life care.
- Identify and address any further gaps from the feedback
- Develop a Patient Charter based on feedback from engagement sessions
- Determine our local ‘ambitions’ for end of life care
- Draft strategy to be written by February 2018
- Action plan